What’s That in Your Foot?
December 18, 2009 by Angela
Filed under Acceptance, Lifestyle
Before I talk about my hair woes, I wanted to put a picture up I created of me and Eric. I am a HUGE True Blood fan, and I’m really mad that HBO has been keeping me in suspense since I missed the last three episodes of the second season! It feels like its taking forever for them to just get through that first season of reruns. Anyway, Eric is one of my favorite characters from the show and I am posting this picture for my own absolute enjoyment. LOL
OK, Over the last month my hair loss has seemed to go into remission again. I say that with hesitation because it typically takes about six months to know for sure a person with alopecia is in remission. After keeping the swamp cooler off for three months, my circled patches started to grow back in and my hair started to fill out. Its coming in quite nicely again, with very little permanent loss. After shaving it off about three months ago, I had it in my mind to never try and grow my hair out again. It will never look or feel the same as it used to and it would be necessary for me to get some sort of hair system to make my hair look semi normal. I’m not into hair systems or toppers, and I only wanted to get a wig for days that I felt like mixing it up a bit. So why am I growing it back this time around? Well, about a month ago my scalp started hurting very bad. As I’d bic it, it felt like the razor was dulling with each stroke against the scalp. By the time I’d be done shaving it, my head felt like it was on fire and I’d end up nicking my scalp pretty bad. I don’t need any new interesting designs on my beautiful bald head due to razor scars! So I laid off the razor for awhile. As November came and went, it perplexed me as to why my razor would dull so bad and my head hurt like a million needles were being pierced through it.
One of the lovely side affects for some individuals living with Alopecia Areata (in its many forms) is the possibility of growing what looks like translucent hairs. To the ‘lucky’ people that have to deal with this strange phenomenon it is almost surreal to view. Guess who has these hairs growing in? Yup, yours truly. It isn’t a pleasant experience for me to feel them coming through my scalp, nor is it any comfort to feel them on my head. You see, they are like hard plastic strands of see-through hair. Ever hear of see-through hair? They shimmer when light is cast on them…they feel like freshly laid astro turf! There is nothing soft or pleasing, feeling hair you can’t even see. And these rogue hairs are dangerous too! I’d like to share an unbelievably true story that takes place in my bedroom just a few short weeks ago:
Picture this…it’s nightfall and all is well in our house. I settle into bed and Dom comes in the room and is walking around barefoot. All of the sudden, he starts to limp. “Ouch!” He exclaims as he makes his way over to the light so that he may better view the “thing” that has pierced his foot. He looks but doesn’t see anything. Then he says to me “Can you look to see what’s stuck in the bottom of my foot? I think there’s glass in there!” He limps over to me and puts his foot up on my lap. I look and look, and at first I didn’t see anything. I moved his foot closer to the light and I said “Yes! You do have something in your foot.” It was glass like in appearance but thin. I reached to pull it out, and I realized that it was one of those damn rogue translucent hairs! Oh-My-God! It went half way into his foot. I pulled it out and said “Its one of my HAIRS!” He said “No!” and I gave it to him so he could see for himself. My translucent hair is like shards of glass piercing my lover’s foot. How bizarre is that? Now imagine if my hair can do that to the tough underside of a man’s foot, what is it doing to my scalp?
At that point I realized why the blade was dulling on my razor so quickly too. You try shaving something that feels like thick hard plastic strands and see how far you get! The thickness of these hairs is also not the same as my regular hair…its thicker! I’ll be laying off the razor for a while until I don’t have any more pain, but I’m going to have to find either a very sharp industrial blade, or let it grow. I don’t even know how well an electric shaver would work at this point. I love being completely bald, but I can’t risk at this point damaging the skin on my scalp either.
The other issue I have with my hair now is that with these translucent hairs coming in, it looks like I have less hair than I really do. I can’t use conventional hair dyes because they trigger my autoimmune response and they don’t grab the white hair (another lovely part of alopecia) very well. I’ll have to try a henna dye in a dark brown. I’m unsure whether the white hair and the translucent hair would hold color with henna though. I know it would work for my gray hair (I have plenty of those!). I guess all I can do is try huh?
Bald Beauty of the Day
To Shave or Not to Shave
Shaving our heads because of hair loss is a deeply personal decision that no one should pressure another into. I made the decision to shave my hair off because I couldn’t bear to see it lying every where. Waking up and seeing it in my bed, on my pillow, all over my clothes and even in the crack of my ass! Every time hair fell out, I was reminded of my plight and then I would go and search obsessively for thinning areas. My hair started to get really thin, and because I hated the way I looked in the mirror and the new texture of my hair which was no longer soft or beautiful, I shaved it. It was a way of taking control of my hair loss, and bringing closure to my emotional pain. It actually allowed me to begin the healing process, because I was no longer concerned with how much hair was falling out and when it would stop. I stopped it! In shaving my head, I found over time that I actually look pretty baring my dome. You couldn’t have convinced me of that five years ago, but when I finally brought closure to my hair loss, I was able to see new possibilities for my life.
I always loved my hair and it was so long and beautiful…it framed my face and I could style it according to my mood. I would just about throw up getting so nervous every time I would go for a haircut, and I would sit there ready to pee my pants if the stylist took just a little more than I told her to. My hair was everything to me.
Well, after deciding to stay bald and not let my healthy hair that is left grow back in, I sat and looked in the mirror for a long time. I took everything in about my head, eyes, nose, lips, ears and neck. I looked for my beauty, and holy crap did I start to cry! I realized at that moment that with out my hair, there are no distractions to take away the curve of my nose, the hue and depth of my eyes, my peculiar shaped ears (which my grand baby inherited from me), the softness of my skin and the overall beauty of my face. How come I never noticed before? How could a “bad hair day” bother me so much back then, when my hair was never the attribute that made me beautiful?








