The Sensitive Souls Network

Before I talk about The Sensitive Souls Network, I have to update you all on my “writer’s block” because maybe I wasn’t so honest about my problem. I believe that I hit that middle aged “wall” (crisis of sorts) and I’ve become quite introverted and introspective. I guess that comes with the territory of getting older. I know I’m being cryptic at this point especially since there are MANY things that I would just love to spill my guts over, but it would be in incredibly bad form to do so.

We’ve been here in New Mexico for one year now, and I must say I truly love The Land of Enchantment. I took a trip this past weekend back to New Jersey and I couldn’t wait to get my ass out of there and on a plane back home. There were only four things great about that trip and it had NOTHING to do with being in The Garden State! I got to visit with my daughter, spend some travel time with my son (who came with me to NJ), I got to meet up with a good friend of mine and spent some time with my dad. That’s it! Beyond those things, there was absolutely nothing redeeming about being there. My patience and tolerance (this past weekend) of extremely self serving people is wearing extremely thin (of course I’m being cryptic again!) and I find I now blame myself for creating any assumptions of decency in these types of people…there really is no decency at this point. I really kick myself in the ass for wanting to believe that certain people I’m in contact with are generally good in nature, when in fact I merely allowed the illusion of them being “good” to cloud the truth of the matter…they are self serving, ego-vested, mean people to the core of their being, and no matter how much they want to cover that up with “appearances” they will always have to live with who they are! The experience of my shattered assumptions was enough to make me sick to my stomach. Not because they made me sick in the least, but because I allowed such “good assumptions” to exist in the first place. What does that make me? A sucker? Yup, I’m a sucker! I duped myself into believing things that were only half truths and partial realities. BLAAAA! Introspection is a bitch. But I’ve learned some very valuable lessons about myself and I feel I’ve grown quite a bit as a result of it. That was just a little update on my own emotional state of affairs. Now I’d like to switch gears and tell you all about something I’m pretty excited about:

I’ve been busy building a new social network that I just launched. It is a Network for families with disabilities. I announced the launch on my other blog site Loving Simone, but I’ll also copy it here.

In March 09′ I created “Loving Simone” as a way to reach out to others who may be struggling with the same types of health and neurological issues Simmi is faced with. I also joined several different message boards, groups, listserv’s, as well as social networks trying to get a handle on what was happening to Simone. What I found were some of the most generous and beautiful families struggling to give their disabled children a better life. What I also discovered was that all of us are so scattered across the internet in little micro groups and categories without any place to connect us all.

There are parents out there that may have children suffering with a single food allergy and others on the other end of the spectrum holding on for dear life as their child struggles to live just one more day. No matter how mild or severe the problems are, we need to gather strength from one another and blaze forward in search of the answers that we seek. I believe that The Sensitive Souls Network can be a tool in connecting us with one another easily. I created this Network to be a stepping stone to providing a better quality of life not only for my own grand daughter, but also for all children suffering with a disability.

Reaching out to parents who may have a child with problems but is undiagnosed is another important goal that is very close to my heart. Parents often feel very alone as they take their child from one doctor to the next trying to figure out what is wrong with him or her. It’s frustrating to say the least, and when a child doesn’t fit into any one diagnosis OR has multiple unrelated health problems, parents can feel “left for dead.” I want this Network to be a place of comfort as well as a way to receive much needed resources, wisdom from experienced parents, and a place to grieve if necessary.

I was going to wait till the new year to launch The Sensitive Souls Network, but as I thought about it, I realized that this Network will always be a work in progress with new things to be added daily. The site is kind of empty right now and I still have a lot of resources and information to add, but I would like to open it up and invite you all to become members. Its free to join.

Here are some of the features I put in place, and there are more to come in the future:

• Personal profile page- You can set up your profile to let others know who you and your child are
• Blog- Blog as little or as much as you’d like. The thing I love about this feature is that it can help chronicle your life and keep everyone updated about how your child is doing (or you). I’m a part of a few different message boards, and when others inquire about Simmi, it can become frustrating to try and retell a story over and over. With your own blog on the Network, you’ll be able to write it once and then refer others to your blog about what’s happening so you won’t have to retell a story multiple times.
• Groups- You’ll be able to create your own groups and/or join an existing group.
• Forum- I’ll be adding the Forum in the next few weeks
• Video chat- You can start a private video chat with other members or simply instant message them
• Add photos and videos

Here are some things still to come and in the works:

• Resources
• Main chat room
• Facebook application- you’ll be able to keep your peeps on Facebook up to date with your latest blogs as well as signing in to the Network through Facebook
• Lots more!

As I said earlier, the Network is a work in progress. I value feedback and suggestions! If you have a link, resources or information that you feel would help add to the site, leave a comment on my profile page or send me a private message there.

http://www.sensitivesoulsnetwork.com

Thanks for reading!