A Shift in My Thought Life

The following entry is from our new blog site “The High Desert Chronicles.”

Our family has dreams of starting a homestead…that much is clear, but where? Where do we settle down? We found some land out in the Parajito Mesa and we just fell in love with it. There’s a catch though. The property is landlocked! When we called the realtor back to tell her we were interested, she told me this:

“You can purchase the land, but you can’t live on it legally.” Huh? “Why?” I asked. She stated that the Parajito Mesa is a part of a land scam from many years ago, and the developer never mapped out the plots of land correctly or put in the necessary roads. Basically all of the Parajito land is private, and in order for us to purchase a plot of land, we would need to create access. But from where? There are no legal easements and no legal street address. We would have to plow a road right through someone’s property to access ours. Obviously that isn’t a great idea, nor is it good for having a decent relationship with our neighbors.

The Parajito Mesa is home to about 400 families. As I did some research on it, what I found was heartbreaking. It made me actually want to move there despite the fact that it is illegal. Would we put our family at risk by doing that? Nope. So I had to think of a different way. If we were to live out there, we wouldn’t be able to get mail, be able give a legal change of address, update information on drivers license or other important documents and my grand daughter wouldn’t be able to get her much needed Medicaid. So why do I want to be out there so bad? For me, it has to do with three things I see…the disenfranchised, social justice and environmental justice. These three things are huge, and as time goes by, dreams can become diminished and finally replaced with despair. Does it have to be that way though? It seems as though they are forgotten and left out there to just exist or die. I’m unsure why the burden in my heart is so heavy for these families, but it is there none the less. I guess my thought is that the people on Parajito Mesa have an opportunity to make their own homesteads if they wanted. I believe that any family that is willing to make their lives better should have access to the tools and knowledge that would make that life an actual reality.

What can we do? How can we help? I believe that if we were to purchase a house with some land near the Parajito Mesa, we could begin to open up our home to those who would seek something more for their families. As we build our homestead in that region, others who are interested could come along side of us, learning the principles of water harvesting, earthworks and permaculture and bring that back to their own land and begin incorporating those techniques and principles. I don’t have any visions of grandeur, just a simple desire to help those who want help.

Most of the families out there are on ten acres of land each. How much food can grow on ten acres? I say that rhetorically, because even an 1/8 of an acre can be intensely gardened to produce thousands of pounds of food per year. They each have way more than an 1/8 of an acre which makes it possible to grow many different kinds of fruit trees, acres to grow grains, agave, and so many other types of fruits and veggies. Is the lack of water the problem? If they are conventional farmers, yes. But I believe if they begin to understand how earthworks and water harvesting principles work, they will be able to actually cultivate their land, build their soil and create something absolutely stunning. They are worth it, don’t you think?

If there are any permaculturalists in the area looking for a worthy cause to donate your time and talent, you can contact me by filling out the form on my Contact page. I would love to hear from you.

Here is a video I found on youtube about the Parajito Mesa:

The Long Recovery Road

I’m starting to feel like my “old self” again instead of just feeling old! Since the end of October and into November 09′ I started to feel really run down. I was forgetting things easier, my mind was clouded and I could only do one thing mentally at a time. Being a multi-tasker online, I found it increasingly difficult to have more than one tab open and I would start to get flustered really easily. My heart would race in anxiety and depression soon set in. This was no ordinary depression where I would feel down on myself…no, this was an all out emotional assault inwardly. I would look in the mirror and see this old and very very bloated woman, “Who are you?” I would say to myself. Things got increasingly worse as I would feel my lungs crackle and holler. The looming fear was that I would get pneumonia again. Having almost lost my life to pneumonia more than once, my husband would lay anxious at night hearing my lungs from his side of the bed. Thoughts of me in intensive care, hooked up to a bi-pap machine and tubes coming out of me caused fear to set in. We only needed to wait a few more weeks until our insurance kicked in and I could get my five year pneumonia shot (I was due!) and onto the proper medication and steriods.  I was holding up ok, dealing with the crackling lungs and wheezing day and night when on Christmas Eve I took a turn for the worse. I could no longer stand up, I was weak and dizzy and my cough was getting worse. I pretty much ruined Christmas for everyone as I laid in bed through most of that following week. I got into urgent care where a one armed doctor refused to do a chest film and just prescribed Advair, Prednisone and Abuterol. My insurance had just kicked in and we were able to fill the prescriptions. I told him that I needed a pneumonia shot and antibiotics since I do know what pneumonia is like, but he wouldn’t prescribe it.

Not getting any better on the steriods, I saw my primary physician and he listened to my lungs. “Yup, you have pneumonia” he said, and he prescribed me the proper antibiotics as well as more Advair and also Singulair. During that time he also ran some blood work on me, and my thyroid came back low.

Since then, the antibiotics have done there job, and the medication I’m on for hypothyroid is really helping to get me back on track. I don’t feel like an old woman any more, and I feel my brain starting to function as it used to. I’m a little more sharp, a little more sassy and I look forward to the day when everything goes back to normal for me. I know recovering from pneumonia takes a while, but so does having a hypothyroid. I’m taking it day by day and moment by moment. The best part of it all is that the depression is totally gone. I beat myself up for a while there wondering why I couldn’t snap out of the funk I was in. I was never the type of person to become depressed or beat myself up emotionally. I’m glad those chains have been broken, and that the little butterfly gland known as my thyroid is starting to get the help it needs!

Bald Beauty of the Day

Happy Holidays

I thought I might amuse you all this holiday season with a few other JibJab creations…ENJOY!

Oh, and one more because I LOVE Weird AL!

Have a very safe and awesome Holiday!

Unprepared and Full of Regret

On Friday December 18th, I needed to take my son to the doctor to get a sports physical. Whenever I have to take Simmi out to the store or anywhere else, that nagging fear of what is lurking on the floor or in some seat cushion is always plaguing me. I’ve learned to live with this fear for well over a year and at times I’ve been criticized or looked at weird when I explain that Simmi’s severe food allergies keeps us from attending some event, playgroup or even the thought of attending preschool in August 2010. Going out of the house is a major anxiety event for me each time I pick Simmi up to put her into the car. Questions always enter my mind “Who sat in this shopping cart before her? What was that kid eating? What was on his or her hands that they may have transferred onto the surface Simone touches?” If I go to a doctor’s appointment for her, on the way I’m wondering about the mother who lovingly brought along a snack for her toddler consisting of Honey Nut Cheerios, cheddar cheese Gold Fish, poptarts or anything else that is convenient and will keep a little one satisfied and happy. It seems so unnecessary to have those things swimming around in my mind, but I can’t help it. I worry about these things constantly, always being on guard for that stray peanut or other product that could harm or even kill Simone.

When we go out there is always a set of eyes on Simmi. Whether it is me, Dom or one of my kids, someone is always watching. We arrived at my son’s appointment and Simmi was running around being her cute self. My son Noah was faithfully keeping an eye on her as I filled out the paperwork for his visit. I was unprepared for the events that transpired shortly before Noah went in to the examining room. You see, I let my guard down. Whenever we enter a store or anywhere unfamiliar, I always scan the place with my eyes looking for that “thing” that could cause Simmi harm or death. I didn’t scan the doctor’s office. We walked into that office, I got the paperwork and just started writing. If it wasn’t for Noah’s loving attention to detail, our situation may be quite different. Neither Noah nor myself noticed that there was a vending machine located in the corner of the waiting room. It was the kind that dispenses candy when you put in a quarter, you turn the lever and grab the candy by the handful. This thing was filled with three different types of candy, one of which was Peanut M&M’s. Simone had wandered over to that machine which had a few M&M’s sitting in the tray just begging to be picked up and tasted! Who was she to argue with the small roundish brightly colored object? She’s never even seen a Peanut M&M before. Noah had turned around for just a second to look my way and when he turned back to watch Simmi, he noticed that she had something brightly colored in her hand AND she was just about to put it in her mouth. He ran across the room as fast as he could and his quick movements caused me to look up to see what was going on. I looked on in horror as he removed the peanut M&M from her hand and threw it in the garbage. At that point I quickly got up and started to walk across the waiting room…but this little toddler of mine was quick! Before I even got to her, she spotted another M&M on the floor and picked that one up too! I was in panic mode. Both times she picked up the candy with her left hand, so I grabbed her and held on to her left hand so she wouldn’t touch any part of her body or put her hand in her mouth. Now the receptionists were staring at us trying to make heads or tails of the events unfolding before their eyes. I rattled off to them all her food allergies and asked for the bathroom so I could wash her hands, but when I got into the bathroom, there was a pump container filled with liquid soap. Still holding her and now also trying to read the ingredients on the back of the soap container, one word stood out in the ingredients “Cocamidopropyl betaine” which comes from Coconut oil. Normally we wouldn’t be concerned with this product since she used to eat quite a bit of coconut oil, but after she had a violent reaction to coconut oil last weekend and because she is now highly allergic to tree nuts, I could not expose her to the soap! All of this was happening so fast that I wonder how I was even able to think properly. I quickly came out of the bathroom and asked Noah to get her wipes out of the diaper bag. I must have used five wipes just on her one hand. Was I over reacting? I had regret racing through my heart, and I was inwardly chastising myself for ever letting down my guard. I wiped off her hands…and mind you, this is all taking place in a matter of three minutes (it felt like an hour!) and all the sudden out comes the welts. She starts scratching her left hand and now she has a bright red rash traveling up her hand and arm. I alert the receptionist that I need Benadryl and I’m kicking myself in the pants now for NOT putting it in her diaper bag the one time we needed it most! Does the receptionist bring me benadryl? NOPE, she brings me cortisone because they don’t have any Benadryl available. I could have gotten mad at her, after all it is a doctor’s office…but I was super angry at myself for not taking the proper precautions in the first place. All I could do was hope that it was just a rash that she would get and stay armed with Epi-pen in hand. The rash traveled up her arm and before the end of ten minutes she was covered from head to toe in a raised red rash. All I could do was look at her like she was a bizarre science experiment. I felt helpless and so unbelievably guilty. We left the doctor’s office, I drove Noah to school and when we got home Simmi ran straight for her room saying “ba ba” “ba ba”. I tried to give her Benadryl but of course she is totally freaking out and screaming if I try to get it into her. It spills all over the place with only a very small amount actually swallowed. She fell asleep in less than five minutes and I sat in the dining room with the monitor turned up as high as it would go just so I could listen to her breathing. Simmi was so exhausted she slept from 11:30am to 4:30pm. I sat with the “shouda, coulda, woulda’s” running through my head.

After she awoke from her long nap, I went in to examine her body and the rash was still there, but so where a few other things that I haven’t seen since she had a severe reaction last year…purple little spots on her chest which happens when she has a severe allergic reaction. She’s OK now, but all that day and into the night Dom and I sat there staring at each other, reminded of just how serious her allergies are. We started going over action plans again, discussing the new things that can’t be brought into the house like Duralogs for the fireplace (they contain nut shells), or real pine wood because of her allergy to pine. It feels like our world is closing in around us as we must continue to do things that will safe guard her well being. Our home has now become completely food allergen free as well. We do not bring anything into the house that contains peanuts (that was always a rule), wheat, milk, soy, eggs or tree nuts. At her allergy appointment when we got the results back from her RAST, we realized that there is a good possibility that even cooking foods that contain the things she is allergic to, could be breathed in by her and caused her levels to increase to an alarmingly high level.

With her speech and vision problems complicating things more, we are hopeful that in time she will be able to communicate with us and let us know when she is starting to feel some sort of reaction coming. All I can do at this point is learn from that experience and always stay on guard and alert without making her feel like the world is a dangerous and unsafe place to live in.

Here are some photos I took of her after her first rash from our dog. Three days after those photos were taken, the outer skin on her nipples started to fall off:

What’s That in Your Foot?

Before I talk about my hair woes, I wanted to put a picture up I created of me and Eric. I am a HUGE True Blood fan, and I’m really mad that HBO has been keeping me in suspense since I missed the last three episodes of the second season! It feels like its taking forever for them to just get through that first season of reruns. Anyway, Eric is one of my favorite characters from the show and I am posting this picture for my own absolute enjoyment. LOL

OK, Over the last month my hair loss has seemed to go into remission again. I say that with hesitation because it typically takes about six months to know for sure a person with alopecia is in remission. After keeping the swamp cooler off for three months, my circled patches started to grow back in and my hair started to fill out. Its coming in quite nicely again, with very little permanent loss. After shaving it off about three months ago, I had it in my mind to never try and grow my hair out again. It will never look or feel the same as it used to and it would be necessary for me to get some sort of hair system to make my hair look semi normal. I’m not into hair systems or toppers, and I only wanted to get a wig for days that I felt like mixing it up a bit. So why am I growing it back this time around? Well, about a month ago my scalp started hurting very bad. As I’d bic it, it felt like the razor was dulling with each stroke against the scalp. By the time I’d be done shaving it, my head felt like it was on fire and I’d end up nicking my scalp pretty bad. I don’t need any new interesting designs on my beautiful bald head due to razor scars! So I laid off the razor for awhile. As November came and went, it perplexed me as to why my razor would dull so bad and my head hurt like a million needles were being pierced through it.

One of the lovely side affects for some individuals living with Alopecia Areata (in its many forms) is the possibility of growing what looks like translucent hairs. To the ‘lucky’ people that have to deal with this strange phenomenon it is almost surreal to view. Guess who has these hairs growing in? Yup, yours truly. It isn’t a pleasant experience for me to feel them coming through my scalp, nor is it any comfort to feel them on my head. You see, they are like hard plastic strands of see-through hair. Ever hear of see-through hair? They shimmer when light is cast on them…they feel like freshly laid astro turf! There is nothing soft or pleasing, feeling hair you can’t even see. And these rogue hairs are dangerous too! I’d like to share an unbelievably true story that takes place in my bedroom just a few short weeks ago:

Picture this…it’s nightfall and all is well in our house. I settle into bed and Dom comes in the room and is walking around barefoot. All of the sudden, he starts to limp. “Ouch!” He exclaims as he makes his way over to the light so that he may better view the “thing” that has pierced his foot. He looks but doesn’t see anything. Then he says to me “Can you look to see what’s stuck in the bottom of my foot? I think there’s glass in there!” He limps over to me and puts his foot up on my lap. I look and look, and at first I didn’t see anything. I moved his foot closer to the light and I said “Yes! You do have something in your foot.” It was glass like in appearance but thin. I reached to pull it out, and I realized that it was one of those damn rogue translucent hairs! Oh-My-God! It went half way into his foot. I pulled it out and said “Its one of my HAIRS!” He said “No!” and I gave it to him so he could see for himself. My translucent hair is like shards of glass piercing my lover’s foot. How bizarre is that? Now imagine if my hair can do that to the tough underside of a man’s foot, what is it doing to my scalp?

At that point I realized why the blade was dulling on my razor so quickly too. You try shaving something that feels like thick hard plastic strands and see how far you get! The thickness of these hairs is also not the same as my regular hair…its thicker! I’ll be laying off the razor for a while until I don’t have any more pain, but I’m going to have to find either a very sharp industrial blade, or let it grow. I don’t even know how well an electric shaver would work at this point. I love being completely bald, but I can’t risk at this point damaging the skin on my scalp either.

The other issue I have with my hair now is that with these translucent hairs coming in, it looks like I have less hair than I really do. I can’t use conventional hair dyes because they trigger my autoimmune response and they don’t grab the white hair (another lovely part of alopecia) very well. I’ll have to try a henna dye in a dark brown. I’m unsure whether the white hair and the translucent hair would hold color with henna though. I know it would work for my gray hair (I have plenty of those!). I guess all I can do is try huh?

Bald Beauty of the Day

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